It's ME awareness day. So I feel the need to write a blog post... or at least, I want to do so. Trouble is, it is hard to know what to say. When I first started struggling with chronic fatigue in my teens, I really didn't want to talk about it. Partly from self-consciousness, partly … Continue reading friends with ME #MEawareness
Chronic illness results in paradox - longing not to be alone but too exhausted to reach out; feeling isolated but then being drained by too much social activity. We - and it is 'we', for there are many of us - live in that difficult balance. It's a balance that even the most practised of us often lose, because although in adapting to our situation things can get easier, they never get easy.
I am staggering to the end of 2017. It will be over soon. We've been hit by some nasty virus ('cold' seems too limp a word, although thankfully we have not had the horror of flu), and though I've now hit the two week mark, I'm still struggling with energy. The first week I slogged … Continue reading this will be over soon